Goal 3: Advance Translational Research

Recognizing that HLB are components of a whole person

RASopathies is one of a group of syndromes that include heart, lung and blood issues, but these are not all the concerns. Recognizing that these organs are part of a functional network (called the human body), partnering with other Institutes could help expedite knowledge of these systems. Leveraging small pockets of funds through mechanisms such as R13 grants where the primary institution is not NHLBI is an inexpensive way to do this. If we look at the whole body, clinical trials with endpoints not directly related to HLB but where HLB are involved, can expand knowledge of HLB as well.

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Is this idea a Compelling Question (CQ) or Critical Challenge (CC)? : Compelling Question (CQ)

Feasibility and challenges of addressing this CQ or CC :

Not hard, no cost.

Name of idea submitter and other team members who worked on this idea : Lisa Schoyer, President, RASopathies Network USA

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Idea No. 1125