Goal 3: Advance Translational Research

Submitted by (@nhlbiforumadministrator)

Implementation science research to reduce adverse effects of SCD

From various publications and reports, we have characterized the risks associated with sickle cell disease (SCD) and understand many of the barriers for treatment of SCD in LMICs. How can implementation science research be used to reduce the negative outcomes of SCD in low/middle income countries?

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18 net votes
31 up votes
13 down votes
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Goal 3: Advance Translational Research

Submitted by (@nhlbiforumadministrator)

Implementation Research to Improve Global Availability of Safe Blood Transfusions

What well-developed principles and lessons learned can be employed to improve the safety and availability of blood transfusions in developing countries? The WHO Global Status Report 2013, many research reports, and a recent assessment of burdens of transfusion transmissible infections with HIV, HBV and HCV identified several critical challenges: 1) Significant proportions of blood collections in a large number of countries ...more »

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7 net votes
20 up votes
13 down votes
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Goal 2: Reduce Human Disease

Submitted by (@sicklecellwarrior)

Mental health and wellness in sickle cell disease

A growing concern among the sickle cell community surrounds the lack of mental health and wellness services. Many in the community deal with anxiety and depression. It is well known how intricately connected mental and physical health are. So if we know that stress can trigger a psychological crisis which in turn triggers a physical pain crisis, why do we not automatically include mental health services within patient ...more »

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25 net votes
38 up votes
13 down votes
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Goal 2: Reduce Human Disease

Submitted by (@jnoel0)

HEALTH CARE DISPARITIES IN DIAGNOSIS AND TREATMENT OF COMMON SLEEP AND CIRCADIAN DISORDERS

There is evidence of a higher prevalence of sleep and circadian disorders in different ethnic groups. This is true for both adult and pediatric subjects. There is also evidence that minority populations in lower socioeconomic groups do not seek evaluation for sleep disorders as frequently as other segments of our population. There is also evidence that they are less adherent to treatments such as nasal CPAP for obstructive ...more »

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118 net votes
163 up votes
45 down votes
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Goal 1: Promote Human Health

Submitted by (@neil.zakai)

Using the Electronic Health Record to improve population and individual health.

Every year millions of individuals suffer diseases of the heart, lungs, and blood. Some diseases have centralized care but rare diseases and diseases treated by a variety of provider types are difficult to study. The electronic health record feels primarily a tool for billing rather than for improving individual and population health. The challenges are:: 1. How can we structure a clinical health record which can ...more »

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12 net votes
22 up votes
10 down votes
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Goal 3: Advance Translational Research

Submitted by (@nhlbiforumadministrator1)

Expand the H3Africa Partnership Model to Decrease HLB diseases

Is there a way to decrease the risks for HLB disease leveraging the H3Africa genomics platform? • Leverage partnerships providing resources to the H3African populations • Identify the best collaborative partners to reach out to the low resource population • Find the best mechanism for collaborations to facilitate the interventions in low resource settings • Merge NHLBI research objectives and goals with those of potential ...more »

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-6 net votes
6 up votes
12 down votes
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Goal 3: Advance Translational Research

Submitted by (@tomtherramus)

Incentivizing Translational Research

Support for scientific research depends on making a compelling case that we contribute to the health of Americans and the health of the US economy. This idea is to address the critical challenge of making basic research relevant to the lives of Americans by incentivizing NHBLI researchers to engage meaningfully in translational research.

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16 net votes
25 up votes
9 down votes
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