Goal 2: Reduce Human Disease

Pick Me, Pick Me! The Challenges of Being at the Mercy of a Few

One significant challenge if you're a patient or a patient advocate is "who is going to find a life-saving treatment or cure for my disease. Who is going to Pick me and my disease?". The answer is complex but lies within the research community's priorities and interests. Think for a moment like a patient. You are at the mercy of the research community at large, government agencies and companies willing to make your disease a priority, to invest in it and to stay focused on it long enough to find the answers that are needed to save your life and others' lives. Oh, and by the way, the only entities on the planet who know who will have possible treatments for their diseases in the next 15 years are federal agencies like NIH and FDA.

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Idea No. 904