Congenital heart disease (CHD) is the most common birth defect and leading cause of defect-related infant mortality. With nearly 1 in 100 babies born annually with CHD, the needs of children and adults born with CHD are ongoing and costly. More focused research into CHD promotes human health and will result in a better quality of life, reduced premature death and lower healthcare costs.
There are not enough large data sets available for researchers to study young and aging patients with congenital heart disease (CHD). There is a need to develop a low cost, high impact, large data collection initiative.