Showing 3 ideas for tag "chd"

Goal 3: Advance Translational Research

Advancing Translational Research

Ensuring that basic science is translated into clinical practice is essential. While there have been great strides in ensuring that babies born with congenital heart defects (CHD) are identified and repaired, we know that there are lifelong implications for those with CHDs that require continued follow-up and treatment. As the proportion of those with CHDs as adults continues to outpace the pediatric population, we urge... more »

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Goal 2: Reduce Human Disease

Promotion of human health and reduction of human disease

Congenital heart disease (CHD) is the most common birth defect and leading cause of defect-related infant mortality. With nearly 1 in 100 babies born annually with CHD, the needs of children and adults born with CHD are ongoing and costly. More focused research into CHD promotes human health and will result in a better quality of life, reduced premature death and lower healthcare costs.

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Goal 1: Promote Human Health

Holistic Approach to Evaluating Aging Congenital Heart Cohort

There are not enough large data sets available for researchers to study young and aging patients with congenital heart disease (CHD). There is a need to develop a low cost, high impact, large data collection initiative.

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Funding an initiative would challenge the community to explore the issues related to the aging CHD community and the combination of physical and emotional stresses. Once the data are available, it may open new areas of targeted healthcare and medicine.

Feasibility and challenges of addressing this CQ or CC

This community continues to grow, age, and we could only hope they continue to enjoy good health and improved function in our society.
So often RO1's and other grant mechanisms have a singular disease focus approach to a cohort, but this growing and aging population is influenced by more than one concern. Medically, there are common chronic conditions like cardiovascular disease and obesity (with all their concomitant issues), and newer issues such as family and child bearing, quality of life related to employment, social inclusion/exclusion, and the aging of the caretakers.

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