Goal 3: Advance Translational Research
Challenge
Genetic or biologic makers that predict outcomes in pulmonary fibrosis are needed.
Validated animal models of lung fibrosis that better resemble the human condition are needed to speed up the drug development process.
An international patient registry is needed to help promote understanding of the natural history of pulmonary fibrosis and real-world impacts of interventions.
Voting
Fibrosis Care Center Network and Patient Registry
Voting
National ARDS Registry
Voting
Registry of new-onset, post-operative atrial fibrillation
There is a need for an observational registry of new-onset post-operative atrial fibrillation (AF) patients to better understand the mechanisms of post-operative AF and allow clinicians to define patient-specific AF phenotypes and treatments. The registry’s information and infrastructure could be used to develop and conduct clinical trials that provide strong evidence for guidelines in treating this common problem.
Voting
National cardiac arrest registry
Cardiac arrest registries are needed to measure and improve the process and outcome of resuscitation care and provide a platform for exploring insight into risk factors, prognosis, and the effectiveness of interventions for out-of-hospital (OHCA) and in-hospital cardiac arrest (IHCA).